Miscellaneous
If you are new to the PANDAS, PANS or AE diagnosis or you’ve been fighting the disease for years- this episode has something for you! We are sharing the TOP 5 TIPS- crowdsourced from seasoned caregivers. LINKS TO STUFF I DISCUSS IN THIS EPISODE: Molecular Labs- has a wonderful site full of great information. I especially like the "Parents and Patients" section that offers informational videos. This is one of my favorites: https://www.moleculeralabs.com/moleculera-labs-pandas-and-pans-video My Kid Is Not Crazy a documentary all about PANDAS and PANS. Parents report that his doc, is the visual they need to help family and friends understand their experience. Learn more here: https://mykidisnotcrazy.com/ Scroll down to the very bottom and click "watch" for options to order a DVD copy or stream. PANDAS Physicians Network https://www.pandasppn.org/ great handout for physicians https://www.pandasppn.org/seeingyourfirstchild/ Another good one https://www.pandasppn.org/flowchart/ National Institute of Mental Health - NIMH https://www.nimh.nih.gov/health/publications/pandas/index.shtml Official NIMH Treatment Guidelines https://home.liebertpub.com/news/revised-treatment-guidelines-released-for-pediatric-acute-onset-neuropsychiatric-syndrome-pans-pandas