Two hours after recording my last update, Korbin’s oxygen dropped to 86—and we were headed back to the hospital.

Since then, we’ve had another hospital stay, a pulmonologist appointment that left me in tears, medication decisions I never expected to be making, and a LOT more questions.

But we’ve also had some big wins, new doctors in our corner, and—for the first time in a while—a little more hope.

Here’s where we are on this crazy roller coaster.