Arts
For our 6th episode of H+K's Health+Wellness podcast, People Not Patients, we focus on our recent I Am Number 17 campaign, launched on behalf of Takeda UK, and what it's like to live with a rare disease. David and Rachel, two of the 17 changemakers involved in the I Am Number 17 campaign, join Jess Walsh and Jessi Langsen for a conversation on their experiences of living with a rare disease. Listen for:What it’s like to live with a rare disease, particularly thinking outside of the doctor’s office – how it impacts work, love and relationshipsBalancing becoming the de facto spokesperson for a person living with a rare diagnosis and the amount of vulnerability needed to talk about a deeply personal experienceHow to manage the isolation of living such a unique experience The climate around COVID-19 as a person living with a rare diseaseFor more information on the I am number 17 campaign, please visit www.Iamnumber17.org.uk