Miscellaneous
More of the Tomoff 20-year odyssey with 5 rounds of cancer. Open your heart to community. Bottle empathy. Embrace post-traumatic growth. Succession planning. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem (Preface) 1 Help the helpers help. 02:05. 1 Open heart, share wisdom, transform, bottle it 04:51. 2 Control, empathy, connection, movement 08:25. 3 Open doors, close doors with post-traumatic stress 12:54. 4 Open and close doors with post-traumatic growth, too 15:23. 4 Succession planning 20:12. 6 Honor the village 24:37. 7 Last words with Olivia 27:14. 7 The drama of family dynamics - intimate in a vulnerable state 28:34. 8 Good news, the unexpected 30:51. 8 Last words from Ryan 32:43. 9 Reflection 34:01. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to David Bourne, Jennifer Keeney, Stephanie Oden, Lisa van Leeuwen, Kathy Cocks Sponsored by Abridge Links The Focused Fight by Terri Tomoff Leukemia Lymphoma Society The Difference Collaborative Knowledge for Caregivers Podcast by Kathy Cocks Related podcasts and blogs https://health-hats.com/pod130/ https://health-hats.com/help_the_helpers_in_crisis/ https://health-hats.com/demntia_covid19/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem (Preface) Welcome back to the Tomoff Family, Olivia, Bill, Terri, and Ryan. Terri Tomoff wrote a book, The Focused Fight, a story about hope and survival of one ordinary family and their community of support to bring a two-year-old through five cancers over twenty years (three times leukemia and twice adult tongue cancer). In episode 1, Honor Supporting Cast, the Stars of Disabling Conditions, we met the Tomoff's and talked about 'We're different, That's normal'; spiritual health; pillow, pills, poop, and piss; and freaking out. All inward-looking. Inward into the family. Today we'll shift our gaze out to the community and into the future. As care partner to several family members' end-of-life-journeys, I felt the awkwardness of the loving, the concerned, and the generous. How can we help? What's acceptable language? Am I intruding? We'll hear thoughts from the Tomoffs about living through difficulties and bursting to share what worked and didn't wor...