About

Fiona Tolich“My ultimate goal is to get access to treatment. New Zealand is the second lowest country in all of the OECD countries to get access to the expanded access program. We will keep fighting. My motto is we leave nobody behind. “ - Fiona TolichFiona is 30 year old SMA diagnosed mother from New Zealand. In this episode, she talks about how SMA made her want to advocate for the basic human right which is having access to the most modern treatment and medicine for SMA. Listen in to our discussion about the following topics:Fiona shares her SMA journey and how it would have been treated earlierHow scarce SMA-related information is in New Zealand back in the daysHow she committed herself in advocating for access to treatment and medicine for NZInformation and support she gained from the SMA conferenceFiona is excited to bring home more stories of inspiration and helpful information about SMA management in May 2020 at the SMA Australia conference.Check out the links below to know more about Fiona Tolich and SMA:Facebook - https://www.facebook.com/fiona.maccallum.3LinkedIn - https://www.linkedin.com/in/fionatolich/?originalSubdomain=nzCure SMA - http://www.curesma.org/Call us (03) 9796 5744Email us at reception@smaaustralia.org.auVisit our website at http://www.smaaustralia.org.auFacebook Page: https://www.facebook.com/SpinalMuscularAtrophyAustralia