Episode 88 #nataliastrong Update With Marisa Boidi

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Marisa joins us to give an update on her daughter Natalia who was diagnosed with SMA Type 1 at 6 weeks old. Marisa and her family and friends have raised over $175,000 for Cure SMA over the last 4 years and this year is fundraising to support SMA research at Mass General Hospital. This research is in need of $1,000,000 of funding for research. If you would like to donate directly you can do that here https://because.massgeneral.org/fundraiser/2607974. We are giving 100% of 100 shirts purchased up to 12/7/2020 to support this effort and auctioning off a Shovel Town Flag original wavy flag with 100% being donated as well. Will post auction link when live. Support this show http://supporter.acast.com/be-au-sm-episode-1. See acast.com/privacy for privacy and opt-out information.